Power to the People: Participant Ownership of Clinical Trial Data

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Science Translational Medicine
9 February 2011 vol 3, issue 69
http://stm.sciencemag.org/content/current

Commentaries
Data Sharing
Power to the People: Participant Ownership of Clinical Trial Data
Sharon F. Terry and Patrick F. Terry
9 February 2011: 69cm3

Abstract
Participation in clinical trials is dismally low. In this age of electronic sharing of information of all sorts, trial participants can easily share clinical trial data. The benefits of participant ownership and sharing of trial data appear to outweigh the risks. Thus, the time has come to crowd-source data for diagnostic and therapy development.