Journal of Medical Ethics
September 2019 – Volume 45 – 9
http://jme.bmj.com/content/current

Original research
Meeting the needs of underserved populations: setting the agenda for more inclusive citizen science of medicine (12 July, 2019)
In its expansion to genomic, epidemiological and biomedical research, citizen science has been promoted as contributing to the democratisation of medical research and healthcare. At the same time, it has been criticised for reinforcing patterns of exclusion in health and biomedicine, and sometimes even creating new ones. Although citizen science has the potential to make biomedical research more inclusive, the benefits of current citizen science initiatives are not equally accessible for all people—in particular those who are resource-poor, located outside of traditional networks of healthcare services, or members of minorities and marginalised groups.
Amelia Fiske, Barbara Prainsack, Alena Buyx