Informed consent and registry-based research – the case of the Danish circumcision registry

BMC Medical Ethics
http://www.biomedcentral.com/bmcmedethics/content
(Accessed 16 September 2017)

Debate
Informed consent and registry-based research – the case of the Danish circumcision registry
Research into personal health data holds great potential not only for improved treatment but also for economic growth. In these years many countries are developing policies aimed at facilitating such research often under the banner of ‘big data’. A central point of debate is whether the secondary use of health data requires informed consent if the data is anonymised. In 2013 the Danish Minister of Health established a new register collecting data about all ritual male childhood circumcisions in Denmark. The main purpose of the register was to enable future research into the consequences of ritual circumcision.
Thomas Ploug and Søren Holm
BMC Medical Ethics 2017 18:53
Published on: 15 September 2017