Policies and strategies to facilitate secondary use of research data in the health sciences

International Journal of Epidemiology
Volume 46, Issue 6, 1 December 2017
https://academic.oup.com/ije/issue/46/6

Editorial
Policies and strategies to facilitate secondary use of research data in the health sciences
Paul R Burton; Natalie Banner; Mark J Elliot; Bartha Maria Knoppers; James Banks
International Journal of Epidemiology, Volume 46, Issue 6, 1 December 2017, Pages 1729–1733, https://doi.org/10.1093/ije/dyx195
Abstract
Data are increasingly seen as a fundamental resource that underpins research across biomedicine and the broader health sciences. They often have important value and utility beyond the purpose for which they were originally collected. Recognizing this, many initiatives across the globe actively seek to enable and promote greater sharing of research data, and most major funders now require researchers to set out formal plans for managing and sharing their data with users beyond their own study team. To provide a contextual backdrop to the article and to point the reader to additional sources of relevant information, we include a table listing examples of international, regional and national projects that seek to enhance and facilitate data sharing in a variety of different ways. Table 1 is not intended as an exhaustive catalogue, rather it aims to provide an illustrative listing of a variety of projects we believe to be in good standing around the world, to demonstrate the broad diversity of responses to the important challenges presented by data sharing.