The usefulness and acceptability of a personal health record to children and young people living with a complex health condition: A realist review of the literature

Child Care, Health and Development
Volume 45, Issue 3  Pages: 313-472  May 2019
https://onlinelibrary.wiley.com/toc/13652214/current

REVIEW ARTICLES  Open Access
The usefulness and acceptability of a personal health record to children and young people living with a complex health condition: A realist review of the literature
 There are a growing number of children and young people (CYP) with chronic health needs or complex disabilities. Increasingly, CYP with life‐limiting or life‐threatening conditions are surviving into adulthood. Communication between CYP, their family, and health professionals can be challenging. The use of a personal health record (PHR) is one potential strategy for improving communication by promoting CYP’s health advocacy skills. However, PHR implementation has proved difficult due to technical, organisational, and professional barriers. The aim of this realist review is to identify the factors, which help or hinder the use of PHRs with CYP living with a complex health condition.
Janet Diffin, Bronagh Byrne, Helen Kerr, Jayne Price, Aine Abbott, Dorry McLaughlin, Peter O’Halloran
Pages: 313-332
First Published: 28 February 2019