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Volume 9, Issue 5 2019
Understanding non-vaccinating parents’ views to inform and improve clinical encounters: a qualitative study in an Australian community
Catherine Helps1, Julie Leask2, Lesley Barclay1, Stacy Carter3Author affiliations
Objectives To explain vaccination refusal in a sample of Australian parents.
Design Qualitative design, purposive sampling in a defined population.
Setting A geographically bounded community of approximately 30 000 people in regional Australia with high prevalence of vaccination refusal.
Participants Semi structured interviews with 32 non-vaccinating parents: 9 fathers, 22 mothers and 1 pregnant woman. Purposive sampling of parents who had decided to discontinue or decline all vaccinations for their children. Recruitment via local advertising then snowballing.
Results Thematic analysis focused on explaining decision-making pathways of parents who refuse vaccination. Common patterns in parents’ accounts included: perceived deterioration in health in Western societies; a personal experience introducing doubt about vaccine safety; concerns regarding consent; varied encounters with health professionals (dismissive, hindering and helpful); a quest for ‘the real truth’; reactance to system inflexibilities and ongoing risk assessment.
Conclusions We suggest responses tailored to the perspectives of non-vaccinating parents to assist professionals in understanding and maintaining empathic clinical relationships with this important patient group.
Strengths and limitations of this study
Parents were recruited and interviewed in a non-clinical setting allowing them to express their views without time constraint, judgement or consequence.
Adds knowledge about a difficult to access group of parents.
Interviews occurred in a unique geographical cluster of under-vaccination in which there is a well-established community emphasis on natural health and lifestyle which is not representative of the broader Australian community reducing generalisability.