Model consent clauses for rare disease research

BMC Medical Ethics
(Accessed 3 Aug 2019)


Research article
Model consent clauses for rare disease research
Rare Disease research has seen tremendous advancements over the last decades, with the development of new technologies, various global collaborative efforts and improved data sharing. To maximize the impact of…
Authors: Minh Thu Nguyen, Jack Goldblatt, Rosario Isasi, Marlene Jagut, Anneliene Hechtelt Jonker, Petra Kaufmann, Laetitia Ouillade, Fruszina Molnar-Gabor, Mahsa Shabani, Eric Sid, Anne Marie Tassé, Durhane Wong-Rieger and Bartha Maria Knoppers
Citation: BMC Medical Ethics 2019 20:55
Published on: 1 August 2019