Overvaluing individual consent ignores risks to tribal participants

Nature Reviews Genetics
Volume 20 Issue 9, September 2019
https://www.nature.com/nrg/volumes/20/issues/9

 

Comment | 15 July 2019
Overvaluing individual consent ignores risks to tribal participants
Genomic studies often rely on individual-based consent approaches for tribal members residing outside of their communities. Tsosie et al. argue that this consent model fails to acknowledge the risks to small groups such as tribes, which can implicate the community as a whole.
Krystal S. Tsosie, Joseph M. Yracheta & Donna Dickenson