Legal and ethical framework for global health information and biospecimen exchange – an international perspective

BMC Medical Ethics
http://www.biomedcentral.com/bmcmedethics/content
(Accessed 25 Jan 2020)

 

Debate
Legal and ethical framework for global health information and biospecimen exchange – an international perspective
The progress of electronic health technologies and biobanks holds enormous promise for efficient research. Evidence shows that studies based on sharing and secondary use of data/samples have the potential to significantly advance medical knowledge. However, sharing of such resources for international collaboration is hampered by the lack of clarity about ethical and legal requirements for transfer of data and samples across international borders.
Authors: Lara Bernasconi, Selçuk Şen, Luca Angerame, Apolo P. Balyegisawa, Damien Hong Yew Hui, Maximilian Hotter, Chung Y. Hsu, Tatsuya Ito, Francisca Jörger, Wolfgang Krassnitzer, Adam T. Phillips, Rui Li, Louise Stockley, Fabian Tay, Charlotte von Heijne Widlund, Ming Wan…
Content type: Debate
21 January 2020