Giving patients a voice: implementing patient and public involvement to strengthen research in sub-Saharan Africa

Journal of Epidemiology & Community Health
April 2020 – Volume 74 – 4
https://jech.bmj.com/content/74/4

 

Commentary
Giving patients a voice: implementing patient and public involvement to strengthen research in sub-Saharan Africa (31 January, 2020)
Carol Bedwell, Tina Lavender
…Active involvement in research and healthcare is very much expected and is well established within many high-income settings. However, in low-income settings, PPI is in its infancy, with few researchers understanding the concept.4 This may lead to a failure to match health need with appropriate research,5 particularly when the research agenda is set by others, leading to acknowledged power imbalances.6 In such settings, empowerment of individuals is low and patients are not included in research design or conduct. In sub-Saharan Africa, gender inequalities mean that women have limited input into both healthcare-related decisions and research.7 Experience of working in these settings highlighted that this is the case even in research which is women-centred, such as maternity care…