Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data

Nature Reviews Genetics
Volume 21 Issue 6, June 2020
https://www.nature.com/nrg/volumes/21/issues/6

 

Perspective | 06 April 2020
Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data
In this Perspective article, the authors discuss how Indigenous Peoples’ desires for greater involvement and oversight when participating in genomic research projects can be balanced against calls for unrestricted data access. They provide practical recommendations for the handling and sharing of Indigenous genomic data, with the aim of achieving mutual benefit for the research community and participating Indigenous communities.
Maui Hudson, Nanibaa’ A. Garrison[…] & Stephanie Russo Carroll