A qualitative study on aspects of consent for genomic research in communities with low literacy

BMC Medical Ethics
http://www.biomedcentral.com/bmcmedethics/content
(Accessed 13 June 2020)

 

Research article
A qualitative study on aspects of consent for genomic research in communities with low literacy
Authors: Daima Bukini, Columba Mbekenga, Siana Nkya, Lisa Purvis, Sheryl McCurdy, Michael Parker and Julie Makani
Content type: Research article
12 June 2020
Background
Low literacy of study participants in Sub – Saharan Africa has been associated with poor comprehension during the consenting process in research participation. The concerns in comprehension are far greater when consenting to participate in genomic studies due to the complexity of the science involved. While efforts are made to explore possibilities of applying genomic technologies in diseases prevalent in Sub Saharan Africa, we ought to develop methods to improve participants’ comprehension for genomic studies. The purpose of this study was to understand different approaches that can be used to seek consent from individuals with low literacy in Sub-Saharan African countries in genomic research to improve comprehension.